the tao of jaklumen

the path of the sage must become the path of the hero


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I Am So Tired Right Now

If it isn’t already bleedingly obvious right now, I’m on a blogging hiatus.

I am so tired.

 

A quick note- there will be a little salt in the following words.  If coarse language offends you, I won’t be offended in turn if you gloss over the next parts, or even stop reading.  I will be grateful if you continue, however.

Hit the road, Jill

I trounced Boy’s ABA therapist.  As in I told her to get out.  Then, I could only take so much of her boss blowing smoke up my ass.  It’s a semi-long story that I just don’t have time or energy to elaborate on right now.

I am very excited to have a new artist- Saphyre Rain- to write press for We Heart Music.  (What’s We Heart Music?  For those who haven’t been here over the long, long slog, leave me a comment, and I’ll explain.  For now: a music blog I wrote for back in the day.)  It’s comprised of a husband and wife duo singing about hope for suicide and self-harm issues, which are very personal and important to me.  I’ve been corresponding with Amanda, the singer/guitarist of the group, and she’s been very congenial… I’m grateful she specifically asked me to take my time.

Errrrrgggh, this is so frustrating.  I’m really frustrated!

I’m so frustrated, in a certain way.  cough No, won’t elaborate.  It doesn’t help that Cimmorene has a new memory about being molested by a caregiver when she was 3.  Why thank you, fate.  Yes, I will have another bitch slap, please.

More work on this post than I was expecting.  I’m still tired.

It takes effort to distill thoughts to 120 characters, but Twitter is less exhausting… as was discussed in the previous post.

Full body fire.  Or pins.  Or numbness.  It varies.


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Descending further down the Abyss (Transitions)

I now have a collapsing disc just above the fused vertebrae, and awful swelling around the bone graft of the fusion.

Just how far can the pain go?

Thinking on my experiences with domestic violence— yes, sadly, that is a thing I’ve witnessed, and experienced.  Lindsay Fischer (then as Sarafina Bianco) and Amy Thompson welcomed me into #domesticviolencechat, another Twitter chat that intersected with the #sexabusechat community.  I wasn’t sure I fit in, at first… much like the other Twitter communities I mentioned.  But I was nevertheless accepted.

We’re all wondering where Timothy (@GerhardTimothy) is and that he’s okay.  I especially value the conversations we had, because then it was easier to feel okay as a man in the chat discussions.

I’ve told Amy a little bit about my experience, but haven’t told anyone else much in full.  That will change, soon.  I think Lindsay and Amy encourage my perspective (they’ve said this to me numerous times in various ways) because it adds more scope to the issue.  It’s not just a woman’s issue, and it’s not just an issue between couples.  In my experience, it involves generations of families- although such matters are usually discussed in abuse contexts (child abuse, adult abuse, etc.)

I think it’s also time to bring out the Redemption of the Four Kingdoms material.  It’s long overdue, actually– if many of you remember my teasings and many cryptic references to it, I’ll be amazed.

But so much of this writing is difficult to do when I am drowning in wave after wave of agonizing pain.  I’ll have to do it in bits and pieces.  I’ll probably write posts that I feel are lacking in quality, although I want to cut down on the perfectionistic traps and toxic habits mingled in such thinking.

I will try to sleep now, dear readers… it’s 02:39 as of this writing where I am.  I hope the pain will ebb, and the terrifying nightmares stop.  Only about a week ago, I dreamt I was molested and raped.  Again.  In a different way.  It felt so real, but I’d never experienced it in real life.  How?

A Journey of Recovery: Staples are out

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Ooh, the staples! (25th of January, 2015)

laminectomy scar

Animated GIF of the nurse removing the staples (27th of January, 2015)
staples out


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Trial stim a success– permanent to come

Click through if image isn’t already big enough

 

So the leads are out of my body, since the trial period is over.  All in all, it was a big success.  I was able to sleep better… I was awake before Cimmy and the kids were every single day of the trial– even as early as 04:30, and I wasn’t tired later in the day.  It was easier to go out, although having a chord coming out of my back was still a bit awkward.  For example, I went to a meeting with two of my daughter’s teachers, and I didn’t dread going (because I was usually grumpy and anti-social with all the pain).

 

 

 

Overall, my mood and alertness has been a lot better.

 

 

 

So what now?  Well, it’s waiting for insurance to approve the permanent procedure, which would involve a battery being implanted under my skin– probably just above my left buttock.  It might look similar to this, but lower down the spine:

 

 

 

English: Anterior view X-ray of a Medtronic Sp...

 

Enhanced by ZemantaWhat I really like is the surgeon I asked to be referred to was the one that did my fusion surgery.  The only thing is I’ll have to tell his nurse practitioner– “You said don’t come back for 10 years… sorry it’s a bit sooner than that.  If this goes as well as the trial, maybe I won’t come back for another 10, or whenever the battery needs to be charged.”